pubmed patient portal and volunteer

Is a portal feasible to collect and display patient-provided health information?

This study explored aspects of how patient-provided health information could be obtained through an electronic portal and presented to inform and engage patients while also providing information for healthcare providers. Methods: We invited participants using ResearchMatch from 2 cohorts: (1) self-reported healthy volunteers (no medical ...

Do patient portals improve patient engagement and engagement?

Study volunteers attempted to contact and enroll patients in the MyChart patient portal to allow the completion of a post-discharge video visit. If patients were unable to enroll, barriers were documented and coded for themes. Of the 324 patients discharged from MSBI during the study period, 277 (85%) were not yet enrolled in MyChart.

Do geniuses increase patient interest in portal enrollment and provider involvement?

Sep 18, 2018 · Patient and healthcare provider views on a patient-reported outcomes portal. Robert M Cronin, 1,2,3 Douglas Conway, 4 David Condon, 5 Rebecca N Jerome, 4 Daniel W Byrne, 1,2,4,6 and Paul A Harris 1. Robert M Cronin. 1 Department of Biomedical Informatics, Vanderbilt University Medical Center, Nashville, TN, USA.

Key Words

Patient portals are personal health record (PHR) systems tethered to a health organization’s electronic health record (EHR) system. They allow patients to track their medical history, access their medical records, and communicate with their health-care providers, and in some cases, they record patient-entered data.

Materials and Methods

Figure 1 illustrates the literature review strategy.

Use of a Patient Portal by Pulmonologists in a Group Practice

We looked at the use of a patient portal implemented in early 2009 in a multispecialty group practice in the northeastern United States. As of May 31, 2014, 51,770 active patients in this practice had activated their access to the patient portal.

Conclusions

PHRs have value to providers and patients in numerous health-care settings and scenarios; however, this review of the literature reveals that in the PHR and patient portal knowledge base accumulated to date, very few studies have addressed the use of PHRs for pulmonary conditions or by pulmonologists.

Abstract

It is not clear how to effectively recruit healthy research volunteers.

Keywords

This is an Open Access article, distributed under the terms of the Creative Commons Attribution licence ( http://creativecommons.org/licenses/by/4.0/ ), which permits unrestricted re-use, distribution, and reproduction in any medium, provided the original work is properly cited.

Introduction

Inadequate recruitment into clinical research studies is a major cause of failure to meet study goals, and leads to a considerable drain on institutional resources. It delays medical progress, limits data for publications and grants, and diverts resources from more productive pursuits.

Results

We initially included 389,768 patients aged 21–89 years who had an in-person encounter (19 encounter types) within the prior 5 years. Of these 389,768 patients, 949 were identified as healthy and had active MyChart accounts (defined as having used their MyChart accounts within the past 2 y).

Discussion

Electronic patient data management systems, including EHRs, are increasingly being utilized to identify potential research volunteers with specific diseases [ Reference Thompson, Oberteuffer and Dorman 6 – Reference Köpcke 14 ]. However, many research studies require healthy volunteers, who can be challenging to recruit.

Acknowledgments

This study was supported by NIH UL1R000128, Oregon Clinical and Translational Research Institute Clinical and Translational Science Award (CTSA).