patient report outcome in dermatology

Patient-reported outcome measures (PROMs) provide an important complement to physician-assessed clinical outcome measures in dermatologic diseases such as atopic dermatitis (AD) and chronic hand eczema (CHE). AD and CHE are chronic and relapsing inflammatory skin conditions that often co-occur.

Full Answer

What are patient-reported outcomes in clinical trials?

Patient-reported outcomes (PROs) are any report of the patients' perspectives about the impact of disease and treatment on their health status, for example quality of life and symptoms, without the interpretation of a clinician, or anyone else [1, 2].

What is patient-reported outcome data?

A patient-reported outcome (PRO) is "an outcome measure based on a report that comes directly from the patient (e.g., study subject) about the status of the patient's health condition without amendment or interpretation of the patient's response by a clinician or anyone else,” according to the National Health Council. ...

How do you develop a patient-reported outcome?

Strategies for Collecting High-Quality Patient-Reported OutcomesSet Clear Goals. ... Use Validated Questions When Possible. ... Avoid Multiple Interpretations of Questions. ... Keep It Short and Sweet. ... Ensure Patient Understanding. ... Choose the Best Method for the Target Population. ... Protect a Patient's Right to Refuse. ... Conclusion.

What are patient-reported outcome measure?

Patient-reported outcome measures (PROMs) are used to assess a patient's health status at a particular point in time. PROMs tools can be completed either during an illness or while treating a health condition. In some cases, using pre- and post-event PROMs can help measure the impact of an intervention.

What are reported outcomes?

Patient-Reported Outcomes (PROs) are defined by the National Quality Forum as “any report of the status of a patient's health condition that comes directly from the patient, without interpretation of the patient's response by a clinician or anyone else.” Most healthcare organizations consistently measure things like ...

What is patient outcome?

Based on our concept analysis of the literature, we define 'patient outcomes' more simply as the results of the nursing care that patients receive in hospital including maintenance of patient functional status, maintenance of patient safety, and patient satisfaction.

What is an example of a patient-reported outcome?

Health-Related Quality of Life Numerous generic health status measures, such as the Medical Outcomes Study Short Form SF-36 (and related measures) and the Sickness Impact Profile are classic examples.

What are two types of patient-reported outcome measures?

There are two basic types: General health PROMs can be used to survey patients with any condition. They usually focus on general well-being, mental health and/or quality of life. Condition-specific PROMs usually concentrate on the symptoms of a particular disease.

Why patient-reported outcomes are important?

Patient-reported outcomes provide information on the patient experience and can be the target of therapeutic intervention.

Abstract

Health outcomes can be captured and reported from a number of perspectives, and the patient’s perspective is central to successful healthcare delivery and optimizing health outcomes. A patient-centered approach is important in dermatology.

Introduction

Health outcomes can be captured and reported from a number of perspectives. Investigators or clinicians have traditionally used outcome measures to capture and quantify patient responses.

Patient Centeredness and Patient-Reported Outcomes

The terms “patient centeredness,” “patient-centered outcome measures,” and “patient-reported outcomes (PROs)” share common concepts. To distinguish among these terms, patient centeredness is the principle that patient preferences are highly valued in all aspects of health care.

Patient-Centered Outcomes Research Institute

In 2010, the Patient Protection and Affordable Care Act was signed into law. Alongside this legislation was the formation of the Patient-Centered Outcomes Research Institute (PCORI) [ 4 ].

International Dermatology Outcome Measures Initiative

In 2013, a group of clinicians, researchers, patients, and other stakeholders interested in developing and validating outcomes in dermatology formed the IDEOM consortium. This organization was launched to address the lack of standardized outcomes in dermatology.

Patient-Centered Outcomes in Dermatology

A classic example of a patient-reported outcome measurement in dermatology is the DLQI [ 6 ]. The DLQI was developed in 1994 and was the first dermatology-specific health-related quality of life instrument.

Conclusion

Healthcare is becoming increasingly more patient-centered. This patient-centered approach is especially important in dermatology, a field where a physician’s assessment of clinical severity does not always correlate with patient-reported scores.

Abstract

Health outcomes can be captured and reported from a number of perspectives, and the patient’s perspective is central to successful healthcare delivery and optimizing health outcomes. A patient-centered approach is important in dermatology.

References (28)

As the prevalence of lasers and light devices to treat dermatologic conditions increases, patient reported outcomes (PROs) will be an essential component of evaluating clinical efficacy and patient satisfaction.