28 hours ago 2. Emergence of patient-facing health IT. According to Pew Research, 7 in 10 U.S. adults say they track at least one health indicator. 7 Although the number of patients interested in accessing their test results and tracking their health parameters has increased, patient portal use nationally is variable. 5,8 For example, Athenahealth reports a 25% adoption rate across 1100 fee-for … >> Go To The Portal
2. Emergence of patient-facing health IT. According to Pew Research, 7 in 10 U.S. adults say they track at least one health indicator. 7 Although the number of patients interested in accessing their test results and tracking their health parameters has increased, patient portal use nationally is variable. 5,8 For example, Athenahealth reports a 25% adoption rate across 1100 fee-for …
Jan 21, 2021 · Empowers patients: Note-sharing promotes collaboration and communication between patients and providers. Collaborative decision-making shows patients they are capable of discussing their notes and taking control of their health. Reduces stigma: Note-sharing removes the mystery from therapy and decreases the stigma attached to mental illness.When …
Oct 19, 2020 · Although providers do need to write notes in clear, concise, and perhaps less judgmental language, this open access does have the power to boost patient activation in care. Correction 12/02/2020: A previous version of this article indicated patient access to clinical notes as a part of the CMS Interoperability Rule.
May 13, 2021 · most patients are already offered open notes via ‘Journalen’, one of the eHealth services on the nationwide patient portal. In the USA, from 5 April 2021 (postponed from 2 November 2020 due to COVID-19) new federal rules mandate that, on request and with few exemptions, all health organ-isations offer open notes to patients.2 3 Worldwide,
The researchers found no demographic differences among nonusers who said that a technology hurdle, lack of internet access or no online medical record was the reason why they did not make use of a patient portal.May 14, 2019
Conclusions: The most common barriers to patient portal adoption are preference for in-person communication, not having a need for the patient portal, and feeling uncomfortable with computers, which are barriers that are modifiable and can be intervened upon.Sep 17, 2020
Information Excluded from the Right of Access This may include certain quality assessment or improvement records, patient safety activity records, or business planning, development, and management records that are used for business decisions more generally rather than to make decisions about individuals.
Even though they should improve communication, there are also disadvantages to patient portals....Table of ContentsGetting Patients to Opt-In.Security Concerns.User Confusion.Alienation and Health Disparities.Extra Work for the Provider.Conclusion.Nov 11, 2021
Some of these risks include: reliance on the patient portal as a sole method of patient communication; patient transmission of urgent/emergent messages via the portal; the posting of critical diagnostic results prior to provider discussions with patients; and possible security breaches resulting in HIPAA violations.Mar 1, 2021
FINDINGS. Nearly 40 percent of individuals nationwide accessed a patient portal in 2020 – this represents a 13 percentage point increase since 2014.Sep 21, 2021
What are the Top Pros and Cons of Adopting Patient Portals?Pro: Better communication with chronically ill patients.Con: Healthcare data security concerns.Pro: More complete and accurate patient information.Con: Difficult patient buy-in.Pro: Increased patient ownership of their own care.Feb 17, 2016
Are there drawbacks to PHRs? Building a complete health record takes some time. You have to collect and enter all your health information. Only a minority of doctors, hospitals, pharmacies and insurance companies can send information electronically to a PHR that isn't part of a patient portal.
A robust patient portal should include the following features:Clinical summaries.Secure (HIPAA-compliant) messaging.Online bill pay.New patient registration.Ability to update demographic information.Prescription renewals and contact lens ordering.Appointment requests.Appointment reminders.More items...
One con to keep in mind with patient portals is that some patients may not have much experience with computers, preventing them from getting the most out of it. Another drawback is the potential for data breaches, so you'll need to work with a vendor that provides robust, secure EHR software.May 23, 2017
Perhaps it will inspire shame, hopelessness, or anger. A psychiatrist may be insecure about revealing poor record-keeping habits or, more subtly, may feel discomfort with the notion that reading the chart allows the patient to glimpse into the psychiatrist's mind.Mar 11, 2014
Barriers Restricting Access to EHR Data in Support of Patient Safety and Privacy Laws Can Lead to Diagnostic Errors, Some Involving Clinical Laboratory Tests.Nov 7, 2016
As mentioned in an article published in the AMA Journal of Ethics, mental health professionals may be reluctant to share notes due to the ethical principle of nonmaleficence — which means to do no harm.
Psychotherapy notes are a counselor’s private notes, and they do not include information maintained in clients’ medical records — such as medication prescriptions or treatment plans. The primary purpose of psychotherapy notes is to help behavioral health professionals do their job better.
Builds stronger relationships: Sharing notes with clients helps them develop a stronger sense of trust in their healthcare providers and improves relationships. For example, in surveys following up with patients after reading their clinicians’ progress notes, 37% reported feeling better about their doctor.
Although some exceptions exist, in general, sharing your clinical documentation can boost client engagement and give them greater control of their mental health.
To protect the security of electronic health information. If it’s not feasible due to an uncontrollable event, such as a natural disaster. To temporarily perform maintenance on health information technology. With that said, reading behavioral health notes has many positive effects on patients, and it’s what they want.
If tension arises between you and a client due to a disagreement, include their thoughts in your notes. For example, if a client believes you misdiagnosed them, you might add to your notes that the client disagrees with your diagnosis.
Overall, sharing your notes offers several advantages for your clients and your practice: Empowers patients: Note-sharing promotes collaboration and communication between patients and providers. Collaborative decision-making shows patients they are capable of discussing their notes and taking control of their health.
In 2020, research showed that 96 percent of patients accessing their open notes understood the notes. Of the 4 percent of patients who only understood some or little of their clinical notes, most of them sought out help.
In 2020 data published in JAMA Network Open, OpenNotes researchers reported that 74 percent of providers approve of the practice. Sixty-one percent said they would recommend their colleagues adopt the practice, as well.
In essence, the Cures Act is putting into action widespread OpenNotes, the health data philosophy that all patients should have access to the notes their clinicians take during health encounters. “Over the past decade, this practice innovation—known as ‘open notes’— has spread widely, and today more than 50 million patients in ...
This facet of the 21 st Century Cures Act is important because it includes not just patient data access—which in some cases could start and end with a copy of one’s health records —but also clinical notes.
On the whole, providers must be able to make eight types of patient data available to all patients, free of charge: Providers may still withhold psychotherapy notes or notes the provider has reasonable assumption could be used in a civil or criminal court case or administrative proceeding.
October 19, 2020 - Editor's Note: The ONC has since extended the deadline for providing patient access to clinical notes to April 5, 2021. As part of the 21st Century Cures Act, the federal government will soon mandate that all healthcare providers offer patient access to clinical notes.
Starting in the beginning of November, healthcare organizations must provide patients access to their electronic health data, free of charge. This requirement is different from those elucidated in the HIPAA Privacy Rule because it requires patients to have immediate access to their digital data, such as via a patient portal.
Today, via secure web- based portals, many patients can rapidly and conveniently access their medical records including the very words written by clini-cians (hereafter, ‘open notes’). In some countries, such as Estonia, the Nordic countries and the USA, open notes are advanced.1 For example, in Sweden, most patients are already offered open notes via ‘Journalen’, one of the eHealth services on the nationwide patient portal. In the USA, from 5 April 2021 (postponed from 2 November 2020 due to COVID-19) new federal rules mandate that, on request and with few exemptions, all health organ-isations offer open notes to patients.2 3 Worldwide, however, there is still limited uptake of the prac-tice. For example, in Canada and Germany, open notes are available to some patients but not yet offered universally. In the UK in April 2020, it was announced that patients in National Health Service (NHS) England will be offered access to general practitioners’ clinical notes, although on a prospec-tive basis.4Against these developments, a growing body of research reveals a range of ethical and poten-tial health and safety benefits of patient access to their clinical notes, including greater engagement and boosting recall about their care plans,5–10 ethical dimensions. In this section, we define testimonial injus-tice and hermeneutic injustice which can be interpreted, respec-tively, as giving information/knowledge to others, and making sense of one’s experiences.16 As Fricker, and as other philoso-phers and health researchers have argued, these injustices may undermine healthcare professionalism, leading to risks of patient harm.15 19–21Next, using Fricker’s framework as our foundation, we present evidence from quantitative and qualitative studies of clinicians’ and patients’ experiences and attitudes about open notes. We draw on findings from across medical specialties, including primary care, oncology and psychiatry. In addition, and where appropriate, we document events, some of which are matters of public record. Using this evidence, we propose that, under the explicit or implicitly voiced assumption that ill persons cannot handle access to their clinical notes, patients are subject to forms of epistemic subordination which may incur health disad-vantages. Furthermore, structural disadvantages with respect to patients’ access to their notes may diminish the epistemic resources available to clinicians which, in turn, may result in patient harms. The paper concludes with recommendations on how clinicians, health organisations and eHealth designers might strive to reduce epistemic injustice in this domain.
Epistemic injustice points to a specific kind of injustice done to someone in their capacity as a knower, or as a contributor to knowledge. According to Fricker, this injustice takes two forms, testimonial and hermeneutical, which we discuss below. Although debate has arisen among epistemologists about other kinds of epistemic injustice,19 29 our focus in this paper is on Fric-ker’s framework which remains widely accepted among philos-ophers of medicine.15 20
For example, encourage patients to use the portal to make follow-up appointments, stay on top of recommended screenings, or request refills. Some portals even enable clinicians to create task lists for patients that include activities related to taking medications, eating a healthy diet, and staying physically active.
You can also add portal enrollment steps to paperwork, such as after-visit summaries. Make the instructions actionable and easy for patients to understand — choose clear, direct language and use illustrations, bullets, and numbering where possible . Encourage them to take immediate action.
Working closely with its partners, Inova Health revised the after-visit summary (AVS) to make the benefits of EHRs salient, highlight clear action steps, and encourage immediate action. Analysis suggests that the revised instructions led to a 10% increase in the probability of online patient portal activation.
Patients report not enrolling because they: Don’t remember discussing it with their clinicians. Lack information or motivation — for example, they don’t have signup instructions or they feel too busy.
To facilitate enrollment, automatically enroll your patients in a portal account, instead of waiting for patients to sign up themselves. Keep enrollment numbers up by encouraging new patients to stay registered and offering tips for patients with limited computer access or skills.
Lack information or motivation — for example, they don’t have signup instructions or they feel too busy. Question the value of digital communication — for example, they think it won’t be useful or they prefer phone over email. Need computer help — for example, they don’t have computer access or skills 9.
Receptionists can suggest patients use the portal to schedule appointments, refill prescriptions, and ask questions. Automated follow-up emails after an appointment — as well as bills and receipts — can include a link and remind people to sign up.
To date, more than 6 million patients have easy access to their clinicians’ notes. A map of health systems who have adopted the OpenNotes approach is available at
This can lead to confusion about the diagnosis, the care plan, and any necessary followup activities.
OpenNotes is a national initiative, funded by a grant from The Robert Wood Johnson Foundation, that urges doctors and other clinicians to offer patients ready access to their visit notes. OpenNotes aims to improve communication between the provider and the patient and to involve patients and families more actively in their care. The approach allows patients to read what their providers have written in their clinical notes, to supplement or reinforce what the providers discussed with them in the visit. The notes can also remind patients of steps they need to take in their care plans.
Work attributed to the OpenNotes team, patients, and providers at Beth Israel Deaconess Medical Center, Boston Massachusetts. OpenNotes is a publicly available program funded in part by the Robert Wood Johnson Foundation.
BIDMC is an urban academic medical center with community practices in and around Boston, MA, that volunteered as one of three demonstration sites for a multicenter study of OpenNotes. In the BIDMC pilot program, 39 primary care physicians allowed their 10,000+ patients access to their own notes. Based on the results of this pilot program, the BIDMC Clinical Operations Executive Committee decided to implement the program across all BIDMC ambulatory practices.
Patient portals are intended to engage patients by giving them access to medical information ; however, if patients are unable to understand the information or the system is not usable, patients will not take advantage of them. Despite several aforementioned drawbacks, apps have used evolving innovative designs to engage consumers and offer unique features and functions that could be translated to patient portal design. For instance, Apple's ResearchKit's Diabetes app pings the user daily to update disease and symptom-related information. Check-in questions or user-friendly alerts in portals could similarly be explored for engaging more patients their health care. Alerts could ask if the patient understands an abnormal result, direct them to helpful resources, and encourage test result follow-up. Finally, test results in the portal need to be easily understood by laypeople or displayed using simplified medical terms. For example, a portal might display elevated cholesterol as "↑LDL cholesterol," or even just display the number without a flag, whereas a health app may label it as “bad cholesterol.”
This statement accompanies the article Patient portals and health apps: Pitfalls, promises, and what one might learn from the other authored by Jessica L. Baldwin and co-authored by Hardeep Singh, Dean F. Sittig, Traber Davis Giardina and submitted to Healthcare as an Article Type. Authors collectively affirm that this manuscript represents original work that has not been published and is not being considered for publication elsewhere.We also affirm that all authors listed contributed significantly to the project and manuscript. Furthermore we confirm that none of our authors have disclosures and we declare noconflict of interest.
There is growing interest in electronic access to health information and the use of digital data for both disease and health-related tracking. Widespread use of health information technology (IT) could potential ly increase patients’ access to their health information and facilitate future goals of advancing patient-centered care.1 For example, health IT can be used to facilitate information exchange with clinicians and instruct patients when to act upon clinical issues, such as out of range physiologic parameters, follow-up of test results, and complications of medication use. 2 Tools such as personal health records, patient portals, and various mobile health (mHealth) applications (apps) have been developed to help patients engage in their own care. Already, a significant number of patients use health IT; therefore, it is essential that patient-facing health IT be tailored to their needs. In this paper, we discuss two forms of patient-facing health IT tools—patient portals and apps—to highlight how, despite several limitations of each, combining high-yield features of mHealth apps with portals could increase patient engagement and self-management and be more effective than either of them alone. This could potentially improve both patient experience and outcomes related to patient-facing health IT.
Mobile apps have the capability to record several types of data, such as activity level, nutrition, and sleep, as well as data related to a consumer's condition or disease, such as diabetes or asthma.
Widespread use of health information technology (IT) could potentially increase patients’ access to their health information and facilitate future goals of advancing patient-centered care. Despite having increased access to their health data, patients do not always understand this information or its implications, ...
In June 2014, Apple announced the HealthKit cloud application programming interface (API) and its partnership with Epic (Verona, WI), an electronic health record vendor who also makes MyChart (a popular patient portal), and the Mayo Clinic (Rochester, MN).