rare patient voice portal

What is rare patient voice?

Rare Patient Voice connects patients and caregivers with research opportunities. We meet patients and caregivers in-person by sponsoring and exhibiting at healthcare events such as conferences and walks. We invite patients and caregivers to join our community. When you need to include the patient's voice in your research, they are ready to respond in sufficient numbers to guide your marketing decisions. #patients #caregivers #rarediseases #healthcare #DTC #clinicaltrials #marketresearch #rxmrx We work with patient advocacy and support groups to provide more opportunities for patients and their caregivers to be included market research. Our goal is to provide opportunities for all patients who are interested to share their opinions about their medical conditions. We know that our patients and caregivers time is valuable too. To date we have paid patients over $7 million dollars for participating in research. We work with industry partners and advocacy groups to change healthcare one Rare Patient Voice at a time! Proud to be included in the INC 5000 list in 2021 as one of the fastest growing companies in the US!

Who is the senior vice president of Rare Patient Voice?

We are happy to announce that Pam Cusick has been promoted to Senior Vice President. A research professional with over 30 years of expertise in study design, implementation, and analysis, she joined RPV in 2016. "Pam is a strong, dedicated, caring leader whose passions for patient advocacy and client service have been integral to the company's growth. She embodies the spirit of Rare Patient Voice, and I couldn't be happier to have her in this key role," said Wes Michael, Rare Patient Voice President and Founder. #leadership #marketresearche #patients #caregivers #rarepatientvoice

Who is the founder of RPV?

RPV President and Founder Wes Michael gives his grandson Taylor an assist and gets in some steps in support of UNICEF's education programs. The finish line is in sight but there's still time to join the MREF Race Around the World for Education or make a donation! https://lnkd.in/dH4R3xK #education #children #community

Is RPV an outreach partner for Eurordis?

At RPV, we are proud to be outreach partners for the upcoming EURORDIS #BlackPearlAwards. Submit YOUR photos of life with a rare disease for the #BlackPearlAwards Photo Award! Don't miss this opportunity to share your story. Enter now! l.eurordis.org/xeZQ #patients #Caregivers #RareDisease