patient report qol-ad

The QOL-AD is a 13-item questionnaire designed to provide both a patient and a caregiver report of the quality of life (QOL) for patients who have been diagnosed with Alzheimer Disease (AD) (Logsdon, Bibbons, McCurry, & Teri, 1999).

Full Answer

Does Qol assessment matter in psychiatry?

The clinical use of information derived from QoL assessment in psychiatry is an important argument when critically evaluating the field. Knowledge about QoL benefits associated with treatments from clinical trials may shape care.

Do Qol-AD scores correlate with other clinical/health end points?

Results of the partial correlation analyses indicated that changes in patient-assessed QOL-AD scores had low correlations with changes in other clinical/health end points, whereas small-to-moderate correlations were observed between caregiver-assessed QOL-AD scores and other clinical/health end points (Table 3).

What is the QOL in Alzheimer's disease scale?

One scale, widely used in studies, is the QoL in Alzheimer's Disease scale (QoL-AD 13) [23] [24] [25]. This scale is available in many European countries after cross-cultural adaptations [26] [27] [28] [29] [30], including France [31]. ... ... The QoL-AD NH is an adaptation of Logsdon et al. 's [23] QoL-AD scale.

Is quality of life a patient-reported outcome?

Assessing quality of life (QoL) as a patient-reported outcome in adult psychiatry poses challenges in terms of concepts, methods, and applications in research and practice. This review will outline conceptually the construct of QoL, its dimensionality, and its representation across patient groups.

What does QoL ad stand for?

Quality of Life in Alzheimer's disease scale (QoL-AD) Response options include 1(poor), 2(fair), 3(good) and 4 (excellent), for a total score of 13–52, with higher scores indicating better QoL. The patients' ratings were performed in an interview, with standardised instructions to avoid influencing the results.

What are some coping strategies for dementia?

Coping strategies may include: practical strategies - eg setting up reminders or prompts, preparing advance decisions or a Lasting Power of Attorney for the future. social strategies - eg relying on family help, seeking spiritual support, joining new activity groups.

How do you cope with Alzheimer's?

Here are some tips:Keep things simple. ... Have a daily routine, so the person knows when certain things will happen.Reassure the person that he or she is safe and you are there to help.Focus on his or her feelings rather than words. ... Don't argue or try to reason with the person.Try not to show your frustration or anger.More items...•

How does Alzheimer's affect quality of life and wellbeing?

As Alzheimer's worsens, people experience greater memory loss and other cognitive difficulties. Problems can include wandering and getting lost, trouble handling money and paying bills, repeating questions, taking longer to complete normal daily tasks, and personality and behavior changes.

What should you not say to someone with dementia?

7 Things Not to Say to Someone with Dementia (and What to Say...“You're wrong” ... “Do you remember…?” ... “They passed away.” ... “I told you…” ... “What do you want to eat?” ... “Come, let's get your shoes on and get to the car, we need to go to the store for some groceries.” ... “Her dementia is getting worse.”

How do you deal with an angry person with dementia?

How to respondTry to identify the immediate cause. ... Rule out pain as the cause of the behavior. ... Focus on feelings, not the facts. ... Don't get upset. ... Limit distractions. ... Try a relaxing activity. ... Shift the focus to another activity. ... Take a break.More items...

Why are dementia patients so mean?

Dementia patients who are mean and aggressive are most likely feeling fear, anger and embarrassment because they have been asked to use skills that they no longer have. When they fail, they may lash out at us.

How do you make a dementia patient happy?

Continue reading to find out some suggestions of activities to do with you loved ones living with dementia and Alzheimer's.Exercise and physical activity. ... Reminisce about their life. ... Engage them in their favourite activities. ... Cooking and baking. ... Animal therapy. ... Go out and about. ... Explore nature. ... Read their favourite book.More items...•

Do dementia patients do better at home?

Do Dementia Patients Do Better at Home? The biggest advantage of home care is that it allows elders to remain in their own homes for as long as possible. This option is far less disorienting for a dementia patient than a move to an assisted living facility, a memory care unit or a nursing home.

How is quality of life measured in dementia?

The PWB-CIP measures aspects of QOL related to psychological well-being. It is an observer-rated, 11-item scale that measures positive and negative affective states and engagement behaviors [7]. It has been used with dementia patients in the mild to moderate stages of severity, who are being cared for at home.

What is the quality of life for a dementia patient?

Domains of QOL in patients with Alzheimer disease (AD) include competent cognitive functioning, the ability to perform activities of daily living and to engage in meaningful time use and social behavior, and a favorable balance between positive emotion and absence of negative emotion.

What is quality of life in dementia?

Quality of Life (QoL) is now an established outcome measure for people with dementia. There is a need to understand if measures are sensitive to change and what factors are associated with change in QoL in dementia in order to develop interventions to improve QoL and identify who may be most likely to benefit.

What are the communication problems of dementia?

The objective of this article is to describe the development of a questionnaire that measures the “experienced communication” of persons with dementia (ECD-P) as well as of their caregivers (ECD-C). Interviews were conducted with five person with dementia—caregiver dyads who had recently received a new communication intervention. Reflexive thematic analysis was performed on the transcripts using ATLAS.ti. Codes were created, categories and themes were identified, and items for the questionnaires were generated. Selection of items and response scales was done in collaboration with the same dyads. The final version was established after pilot testing with seven other dyads and discussion with five experts in the field of dementia care. Analysis of the transcripts resulted in 212 codes and 17 categories within four themes: caregiver competence, social communication, communication difficulties in daily life , and experienced emotions during conversations. The final version of the ECD-P consists of part 1 with 22 items and 4-point Likert scales, and part 2 with two items and 1 to 10 scales. In the final ECD-C (proxy version), part 1 and part 2 are similar to the ECD-P, while a part 3 was added to assess caregivers’ own perspective and emotions (five items). Based on the experiences of people with dementia and their caregivers, we constructed a face-valid questionnaire. This justifies future research to test its clinimetric characteristics.

What is frontotemporal dementia?

Introduction Frontotemporal dementia (FTD) is one of the most common types of dementia in persons younger than 65 years of age. Diagnosis is often delayed due to slow, gradual decline and misinterpretation of ‘non-typical’ dementia symptoms. Informal carers of people with FTD experience greater levels of overall burden than carers of people with other forms of dementia. The aim of this systematic review was to describe the subjective experience of being an informal carer of a person with FTD and to identify the specific needs, coping strategies and helpful support resources of this carer population. Methods Four electronic databases were used to search for published literature presenting experiences of carers of people with FTD between January 2003 and July 2019. Search strategy followed PRISMA guidelines. Findings were analysed using framework analysis, employing five stages of analysis to develop a coding index and thematic framework that included key aspects of the carer experience, which were grouped into themes and presented in a narrative format. Results 1213 articles were identified in total. Twelve studies were included in the final synthesis of the review. Six themes were identified: ‘Challenging road to and receipt of diagnosis’, ‘relationship change and loss’, ‘challenging experiences in caring’, ‘positive experiences and resilience’, ‘coping’ and ‘support needs’. Discussion Findings highlight an increased need for carers of people with FTD to receive support during the pre-diagnostic stage, including support to manage symptoms. Further research should explore relationship changes and loss amongst carers to inform approaches for carer support. In conclusion, the lack of knowledge and unique needs of carers highlight the importance of public awareness campaigns and healthcare professional education to support carers with FTD symptom impact.

What is the purpose of the pilot video analysis?

Background This pilot video analysis was part of a feasibility control study, which aimed to gain information about the size and variability of the changes in outcome measures to plan a substantive effect study. It compared a cognitive stimulation programme named Lifelong Learning with other existing dementia services. Objective The pilot video analysis explored how facilitation is performed, when assessing people with dementia with standardized measures, to ensure their participation in research. Design A test battery of five measures (Mini-Mental State Examination (MMSE), Quality of Life in Alzheimer's Disease Scale (QoL-AD), General Self-Efficacy Scale, Rosenberg Self-Esteem Scale and Hawthorn Friendship Scale) was used. Each assessment was video-recorded. The findings from a microanalysis of 10 videos are presented in this article. Setting The study involved 55 active participants with mild-to-moderate dementia in six municipalities in Northern Denmark. Results The identified themes related to supportive facilitation: Positive facilitator strategies; Creating a safe and comfortable environment; and to dilemmas in facilitation: Balancing multiple dilemmas and Balancing the MMSE test. Discussion Results are discussed in relation to using standardized measures. Conclusion The quality of facilitation when using standardized measures is of great importance as it may influence the participant, the assessment and the answers given. The facilitation role needs to be thoroughly planned and executed with ethical consideration to improve the participation of vulnerable groups in research and ensure a person-centred approach. Patient or public contribution The identified measures were chosen based upon previous qualitative results and user-involvement workshops with people with dementia.

What is the quality of life scale for Alzheimer's?

... 76 The Alzheimer's Disease-related Quality of Life Scale assesses quality of life across all stages of dementia severity, and is used widely within the American healthcare system. 80 However, this scale was created for selfcompletion of people with dementia, which may not be possible in people with severe cognitive impairment. 81 Symptoms of end of life in dementia including pain, apathy and dysphagia, may require specialist skills based on individual need. ...

What is the meaning of "QoL" in Alzheimer's?

Patients usually consider quality of life (QoL) and mood as more important for their health status than disease-specific physical and mental symptoms.

Does levetiracetam help with memory?

Levetiracetam has also been shown to improve memory difficulties in patients with mild cognitive impairment, a pre-cursor to Alzheimer’s disease. Clinical use of levetiracetam is well-established in treatment of epilepsy and extensive safety data are available.

Can seizures cause Alzheimer's?

Seizures, which are more common in patients with Alzheimer’s disease than age matched controls, may contribute to the loss of nerve cells and abnormal brain discharges can disrupt cognition. This aberrant electrical activity may therefore present potentially important drug targets.

Conditions of use

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Translations

The list of available translations is subject to constant changes and may not be exhaustive. It is provided for information only. Some recently produced translations may not be included in the list below yet. Please do check the status of available translations with Mapi Research Trust / the developers / copyright holders / distributors.

More information on translations

Buasi N, Permsuwan U. Validation of the Thai QOL-AD version in Alzheimer's patients and caregivers. Australas Med J. 2014 Jun 30;7 (6):251-9 ( Full text article)