hemophilia patient portal

What is the purpose of the hemophilia program?

The program income generated by this pharmacy is restricted, to be used for patient health, education, and supportive services necessary to provide comprehensive care to patients with hemophilia or related clotting and bleeding disorders served by the HTCs.

How is a diagnosis of hemophilia made?

A diagnosis of hemophilia for you or your child is usually made based on the following observations: Family history of bleeding and the inheritance pattern of those affected

How do you treat hemophilia in children?

If you or your child has moderate or severe hemophilia, you will typically administer some of the clotting factor that is missing in the body. You may do this in a preventative manner (prophylaxis) or only following bleeds (on-demand or episodic).

What is the role of WIC in the treatment of hemophilia?

As a designated Regional Hemophilia Treatment Center (HTC), WIC is charged with providing comprehensive care and promoting optimal health outcomes for adults and children with hemophilia and other types of bleeding disorders throughout the State of Washington and adjoining states.

Is hemophilia a near normal life expectancy?

Today, children with hemophilia who receive comprehensive care can now look forward to a near-normal life expectancy if bleeds are treated appropriately.

Can you administer clotting factor to a child with hemophilia?

If you or your child has moderate or severe hemophilia, you will typically administer some of the clotting factor that is missing in the body. You may do this in a preventative manner (prophylaxis) or only following bleeds (on-demand or episodic). There are many different clotting factor products to choose from for both hemophilia A and hemophilia B, including some which are longer-lasting, and which may require fewer infusions per week or during a bleed. The staff at IHTC can help you make the best decision for your circumstances.

About the Disease

Hemophilia is a disorder in which the blood doesn’t clot normally. It is a rare disease that affects the circulatory system. Subtypes include hemophilia A, hemophilia B and hemophilia C.

Patients can receive free education and support services

The National Hemophilia Foundation conducts research, provides education, and engages in advocacy work surrounding inheritable blood disorders.