guide to patient and family engagement: environmental scan report

What is the Guide to patient and family engagement in hospital quality?

Based on the environmental scan report, AHRQ developed the Guide to Patient and Family Engagement in Hospital Quality and Safety, which underwent pilot testing at three hospitals and was refined based on feedback from patients, family members, health professionals, and hospital administrators.

What is patient engagement framework (PFE)?

US Department of Health and Human Services/Health Care Information and Management Systems Society’s Patient Engagement Framework88– promotes the use of eHealth tools in the development of PFE strategies. Robert Wood Johnson Foundation PFE Toolkit89– presents PFE strategies of primary care practices

How do you ensure patient and family involvement in patient education?

Encourage patients and family members to participate as advisors. Promote better communication among patients, family members, and health care professionals from the point of admission. Implement safe continuity of care by keeping the patient and family informed through nurse bedside change-of-shift reports.

How can we engage patients and families in discharge planning?

Engage patients and families in discharge planning throughout the hospital stay. As a first step in developing the guide, AHRQ conducted an environmental scan assessing the current literature, tools, and resources available to engage patients and families in their care in the hospital setting. The scan includes:

What is the purpose of the Patient and Family Engagement Guide?

This goal of this project is to promote patient and family engagement in hospital settings by developing, implementing, and evaluating the Guide to Patient and Family Engagement: Enhancing the Quality and Safety of Hospital Care (hereafter referred to as the Guide). The Guide will comprise tools, materials, and/or training for patients, family members, health professionals (e.g., hospital clinicians, staff), hospital leaders, and those who will implement the materials in the Guide. Our preliminary vision of the Guide included four components, each with a series of “tools” (e.g., materials, resources, items for training): (1) Patient and Family Active Involvement Materials; (2) Patient and Family Organizational Partnership Materials; (3) Health Professional Materials; and (4) Leadership and Implementation Materials. The tools in the Guide are intended to:

What are the two types of interventions that promote or facilitate patient and family engagement?

We found two broad types of strategies or interventions that promoted or facilitated patient and family engagement: hospital-level and individual-level strategies. Hospital-level intervention sa are implemented by means of changes in hospital policies, processes, systems, procedures, or

What is a guide for quality and safety?

The Guide must be actionable. Many strategies and opportunities identified for engaging patients and family members in quality and safety simply provide information, which might be necessary for action but is not sufficient. In developing and refining strategies and interventions, the materials in the Guide must focus on actions that can be taken, present clear steps to take those actions, and provide support to do so to ensure that patients and family members are full partners, not just recipients of information or recipients of an intervention.

What should the materials in the guide reflect?

The materials in the Guide should reflect what is important and most salient to each individual target audience. For instance, patients care about having a good experience; providers care about clinical and financial outcomes; and hospital leaders care about the former but also must address broader financial outcomes.

What is patient and provider support?

Conceptually, both patients and providers support patient and family involvement and participation in their own care and recognize that it can lead to better patient experiences and outcomes. Patient and provider support for participation becomes more uncertain when patient engagement includes a higher level of involvement; for example, making diagnosis or treatment decisions.

What is the literature on consumers' experience engaging in safety and quality?

The literature on consumers’ experience engaging in safety and quality generally reflects patients’ and families’ willingness to engage in potential behaviors, along with a few self-reports of actual behaviors . We found little observational research to provide evidence about behaviors that patients and families actively engage in within the hospital.

What are the tools included in the Grey Literature Scans?

Tools included handouts, flyers, brochures, posters, videos, and guides that addressed opportunities for patient and family engagement in safety and quality. We downloaded and reviewed tools that were available in the public domain and could be applied to the hospital setting. Tools were assessed on our ideal criteria for inclusion in the Guide: focusing on a hospital setting; reflecting target audience needs and priorities (user-centered); being actionable, that is, focusing on specific behaviors; having been developed with input from the target audience; and having been evaluated for effectiveness and feasibility in a hospital setting. However, we did not exclude tools that did not meet these criteria.

What is a scan in healthcare?

The scan includes: A framework that describes how patient and family engagement can lead to improved quality and safety. A description of factors that influence patient and family engagement, including characteristics and perspectives of patients, families, health care professionals, and hospital organizational and cultural factors.

How to contact Margie Shofer?

For more information about the environmental scan or the Guide to Patient and Family Engagement in Hospital Quality and Safety, contact Margie Shofer at (301) 427-1259 or Marjorie.shofer@ahrq.hhs.gov. Page last reviewed February 2017. Page originally created September 2012.

What is engaged patient?

Engaged Patients is a national campaign under the guidance of the Empowered Patient Coalition to provide patients and their loved ones with the resources to be fully informed and participating members of their health care teams. The website offers a comprehensive hospital guide, a patient journal, a patient decision support web-based app, and dozens of other resources which were developed by, and for patients.

What is the Center for Patient and Consumer Engagement?

Created by the American Institutes for Research, the goal of the Center for Patient and Consumer Engagement is to advance the knowledge and practice of patient and consumer engagement in healthcare . The Center provides resources and shares knowledge to further the science and application of patient and consumer engagement, and also creates a virtual community for learning and knowledge transfer.

What is a patient passport?

This patient passport provides an easy-to-use vehicle for capturing patients' personal preferences as they relate to their health care, their health and well-being, and their goals. Available in both hard copy and electronically as a free app at doctella.com, the tool encourages a more holistic approach to healthcare by imparting crucial self-reported patient information that extends beyond vital signs, diagnoses and medication records.

What is a family centered round?

The Family-Centered Rounds Toolkit is a collection of materials that document the development and implementation of a feasible and sustainable intervention to improve family engagement during family- centered rounds (FCR), which includes an FCR checklist and associated training curriculum. Versions tailored to researchers and clinicians are available on the website.

What is CFAH engagement behavior?

The CFAH Engagement Behavior Framework assembles a list of measurable actions that individuals and/or their caregivers must perform to maximally benefit from the healthcare available to them. The framework provides a basis for concrete, measurable expectations for individuals' behavior that should guide the reorientation of care toward patient-centeredness.

What is the purpose of the environmental scan?

The intent of the environmental scan was to target topics and questions that are directly relevant to the goals of the project, reflect the concepts of consumer engagement and patient- and family- centered care around the issues of patient safety and quality in the hospital setting, and incorporate diverse input and perspectives from multiple individuals and organizations representing patients, families, health professionals, and hospitals.

What is Engaging Health Care Users?

Engaging Health Care Users: A Framework for Healthy Individuals and Communities is a framework developed by the American Hospital Association that embraces the need to engage patients and families and contemplates the role of hospitals and healthcare systems in improving the total health of the population and community they serve. The report includes case studies highlighting strategies that hospitals and healthcare systems have deployed to engage healthcare users.