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Patient portals may enhance patient engagement by enabling patients to access their electronic medical records (EMRs) and facilitating secure patient-provider communication.
The inputs are the material (eg, hardware and software) and nonmaterial (eg, leadership) components that facilitate or impair the establishment or use of the portal. Processes include the interactions of the users with the portal. Outputs comprise the results of the implementation or the use of the portal. Through the analysis, we identified 14 themes within these three categories, shown in Textbox 1.
Studies from patient registries and randomized controlled trials (RCTs) have important and complementary roles in evaluating patient outcomes.15Ideally, patient registries collect data in a comprehensive manner (with few excluded patients) and therefore produce outcome results that may be generalizable to a wide range of patients. They also evaluate care as it is actually provided, because care is not assigned, determined, or even recommended by a protocol. As a result, the outcomes reported may be more representative of what is achieved in real-world practice. Patient registries also offer the ability to evaluate patient outcomes when clinical trials are not practical (e.g., very rare diseases), and they may be the only option when clinical trials are not ethically acceptable. They are a powerful tool when RCTs are difficult to conduct, such as in surgery or when very long-term outcomes are desired.
Data from patient registries are generally used for studies that address the purpose for which the registry was created. In some respects, such as the collection of detailed clinical and longitudinal followup data, studies derived from the patient registries described in this user's guide resemble traditional observational cohort studies. Beyond traditional cohort studies, however, some registry-based studies may be more flexible in that the scope and focus of the data collection activity of the registry may be adapted over time to address additional needs. For example, new studies, such as cluster-randomized studies or case-control studies, may be nested within an ongoing registry, and the database derived from the registry may be used to support secondary studies, such as studies that link the registry database with other data sources to explore new questions.
More recently, the newly formed Patient-Centered Outcomes Research Institute (PCORI) has identified registries as an important potential source of data to support patient-centered outcomes research (PCOR). PCOR “assesses the benefits and harms of preventive, diagnostic, therapeutic, palliative, or health delivery system interventions to inform decisionmaking, highlighting comparisons and outcomes that matter to people; is inclusive of an individual's preferences, autonomy and needs, focusing on outcomes that people notice and care about such as survival, function, symptoms, and health related quality of life; incorporates a wide variety of settings and diversity of participants to address individual differences and barriers to implementation and dissemination; and investigates (or may investigate) optimizing outcomes while addressing burden to individuals, availability of services, technology, and personnel, and other stakeholder perspectives.”45
AHRQ has also developed a guidance system for grading the strength of evidence that recommends a careful assessment of the potential value of observational studies. The guidance, which is designed to support the systematic reviews conducted by the Evidence-based Practice Center (EPC) program, is conceptually similar to the GRADE system.23When using the AHRQ approach, reviewers typically give evidence from observational studies a low starting grade and evidence from RCTs a high starting grade. These initial grades can then be raised or lowered depending on the strength of the five required evidence domains (study limitations, directness, consistency, precision, and reporting bias).24For example, the reviewers may find that observational studies are particularly relevant for some systematic review questions. The report notes:
The utility of registry data for decisionmaking is related to three factors: the stakeholders, the primary scientific question, and the context. The stakeholders are those associated with the disease or procedure that may be affected from a patient, provider, payer, regulator, or other perspective.
The ChartMaker® PatientPortal is an online service that allows a patient to keep track of their personal health information. It will also allow practices to share and receive information easily with patients.
They can either click on the “edit” link on the right side or the heading link on the left navigation pane.
The patient will be able to download documents that the practice has made available. These documents could be registration forms, educational materials, etc.
Patients can view clinical summary information (*automatically gives you credit for Core Measure: Clinical Summaries in the Meaningful Use program)
Note: The patient will need to click “Send Now ” in order to send their changes to the practice.
Patients create their own username and password
Memorial Hospital is dedicated to helping improve your overall health care experience by providing convenient, streamlined resources to help you better manage your health. We now offer the ability for you to securely connect your health record to some of the health management apps you may use (i.e. fitness trackers, dietary trackers, etc.).
This form is to request third-party apps (such as Apple Health, Samsung, Fitbit, etc.) be connected to your Electronic Health Record (EHR).
We work every day to provide patients with expert personal attention and quick access to comprehensive care close to home.
The ability to communicate via message inside of MyChart with your Fairchild provider.
Fairchild Medical Center provides free health information to our community through a program called Advice Nurse.