4 hours ago Spinal Muscular Atrophy Spinal muscular atrophy (SMA) is a genetic, progressive, and often terminal rare disease that affects an individual’s ability to walk, eat, and, ultimately, breathe. Debilitating and often fatal, SMA affects approximately one in 10,000 live births and is a leading genetic cause of death among infants. >> Go To The Portal
Spinal Muscular Atrophy Spinal muscular atrophy (SMA) is a genetic, progressive, and often terminal rare disease that affects an individual’s ability to walk, eat, and, ultimately, breathe. Debilitating and often fatal, SMA affects approximately one in 10,000 live births and is a leading genetic cause of death among infants.
Biogen Collaborates with Invitae to Offer No-Charge Genetic Testing for SMA SMA treatment, with or without newborn screening, requires a genetic test to confirm diagnosis and disease type Cost of genetic testing, even with insurance, is often a barrier to diagnosis and treatment Part of our commitment to widening access to critical treatments More
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Biogen provide a range of downloadable materials which can be a valuable resource for educating patients with MS about their new Biogen treatment following prescription. These resources include information on the treatment itself, practical information around taking the treatment, safety information and presentations for nurses to use with ...
At Biogen, our goal is to improve the lives of patients by researching and developing new and innovative therapies. Before these therapies are commercially available to patients, they must go through clinical trials and be approved by a regulatory authority — such as the U.S. Food and Drug Administration (FDA) and the European Medicines Agency (EMA) — to treat a specific disease. Once our products are approved by regulatory authorities, we begin the complex task of ensuring patient access to our therapies through public and private health care programs.
Biogen’s commitment to patient communities is in our DNA. We are driven by the unmet needs of people living with serious neurological and neurodegenerative diseases, their families and caregivers as well as society. Our employees care deeply about what they are doing because they come to work every day knowing that hundreds of thousands of people worldwide depend on Biogen and our products to make a meaningful difference in their lives.
Biogen provide a range of downloadable materials which can be a valuable resource for educating patients with MS about their new Biogen treatment following prescription. These resources include information on the treatment itself , practical information around taking the treatment, safety information and presentations for nurses to use with patients that have been prescribed a Biogen medicine .
The Tecfidera Patient Support Line is a nurse-led telephone line providing educational assistance for patients prescribed Tecfidera, to support with the management of side effects and aid treatment adherence. The programme includes 8 scheduled calls over the first 3 months of treatment followed by quarterly calls for the remainder of the first treatment year. Patients can be referred into the programme by their healthcare professional, or they can self-refer via the registration form in the patient booklet.
Provided by specifically trained nurses, the Avonex & Plegridy Patient Support Programmes provide educational support to patients within their homes in the administration of their prescribed injectable therapy, to optimise the patient benefit of that therapy. Patients will receive scheduled home visits for injection training and reassessment plus support phone calls over their first year of treatment. Patients can also call the Patient Support Programme nurse directly where additional support is required.
Debilitating and often fatal, SMA affects approximately one in 10,000 live births and is a leading genetic cause of death among infants.
In a rare form of ALS, a mutated protein called superoxide dismutase (SOD1) has been associated with the degeneration of motor neurons. SOD1-ALS is the second most common form of inherited or familial ALS, accounting for up to 20 percent of familial ALS and 2 percent of all ALS cases.
Aducanumab is an antibody that binds to and may reduce amyloid plaques from the brain , potentially slowing the progress of the disease. Learn more about EMERGE and ENGAGE, clinical trials for Alzheimer’s disease. 1 World Health Organization Dementia a Public Health Priority. http://www.who.int/mental_health/publications/dementia_report_2012/en/. ...
It is estimated that more than 25 million individuals are living with AD worldwide 1.
ALS is a progressive neurodegenerative disease that results in the loss of motor neurons in the brain and the spinal cord. Motor neurons provide the ability to move, speak, swallow, and breathe. As the disease progresses, ALS patients gradually lose these abilities.
Parkinson’s disease (PD) is a progressive neurodegenerative disease. It is the second most common neurodegenerative disease, with an estimated 10 million patients with PD worldwide in 2020.
BDCA2 is a protein present in specific cells within the immune system. An antibody against BDCA2 can potentially interrupt production of interferons, inflammatory molecules that are increased in patients with lupus and contribute to disease activity. BIIB074 (vixotrigine) Trigeminal neuralgia.
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