als patient services outreach financial report

How much does the CEO of ALS Foundation make?

The ALS Association employs 97 staff, of which 25 received more than $100,000 in compensation. The 13 most highly compensated staff were paid $2.6 million: $326,750: Barbara Newhouse, President and CEO. $242,308: Stevan W.

How much money did the ALS challenge raise?

$115 millionThe initiative became a huge fundraising success, bringing in $100 million dollars in a 30-day period and $115 million over the summer. The Ice Bucket Challenge continues to raise money and awareness today.

Was the ALS Ice Bucket Challenge successful?

Simply put, the ALS Ice Bucket Challenge has been an epic success. How successful? In the previous year — 2013 — during the same period, the ALS association raised $2.6 million. So far, the Ice Bucket Challenged has raised more than $100 million.

Is als a good charity?

Exceptional. This charity's score is 92.23, earning it a 4-Star rating. Donors can "Give with Confidence" to this charity.

What is the current status of research on ALS?

Experimental drug shows promising results for rare form of ALS. Researchers led by a Washington University neurologist found promising results for an experimental drug to treat a rare, inherited form of amyotrophic lateral sclerosis (ALS), commonly known as Lou Gehrig's disease.

How did the ALS challenge start?

The challenge began in 2014 when pro golfer Chris Kennedy challenged his wife's cousin Jeanette Senerchia, whose husband has ALS. Patient Pat Quinn, of Yonkers, New York, picked up on it and started its spread, but when Frates and his family got involved, the phenomenon exploded on social media.

Is ALS genetic?

Familial (Genetic) ALS About 5 to 10 percent of all ALS cases are familial, which means that an individual inherits the disease from a parent. The familial form of ALS usually only requires one parent to carry the disease-causing gene. Mutations in more than a dozen genes have been found to cause familial ALS.

How social media helped the ice bucket challenge?

Many of us remember the summer of 2014 as the summer of the Ice Bucket Challenge; an enormously effective social media marketing campaign created to raise money and awareness for ALS (amyotrophic lateral sclerosis). Our social media feeds were flooded with friends and celebrities drenched in ice cold water.

What were the benefits of the ice bucket challenge?

The Ice Bucket Challenge generated $115 million for the national office of The ALS Association in 2014, which spurred a massive increase in the Association's capacity to invest in promising research, the development of assistive technologies, and increased access to care and services for people with ALS.

Who founded ALS Association?

In 2001, Frank Carlson, diagnosed with ALS at age 27, founded the organization with the determination to help ease the incredible financial burden and maintain the independence and dignity of others with ALS.

What does the ALS foundation do?

The Association's nationwide network of chapters provides comprehensive patient services and support to the ALS community. The mission of The ALS Association is to discover treatments and a cure for ALS, and to serve, advocate for, and empower people affected by ALS to live their lives to the fullest.

What institutions are doing research on ALS?

ACTIVE – ALS Research Notification for Clinical Trials and StudiesNoStudy NameInstitution8Microbiome in the Progression of ALSEmory University9Evaluation of IONIS in FUS-ALS PatientsIonis Pharmaceuticals10COVID-19 ALS RegistryAtrium Health11ALS Focus Survey ProgramALS Association21 more rows

What is 990 form?

PSI’s 990 forms and Financial Statements are available for public inspection and serves as a source of information about the organization. The form is useful for understanding some aspects of the organization’s mission, programs, and finances. PSI receives financial support from thousands of donors who simply want to help chronically ill patients afford the cost of their medication, treatment, or insurance premium.

Is PSI a 4 star charity?

We are happy to report that PSI received its twelfth consecutive 4-star Charity Navigator rating for sound fiscal management and commitment to accountability and transparency! Only 1 percent of the charities they rate have received at least 12 consecutive 4-star evaluations, indicating that PSI outperforms most other charities in America. Additionally, PSI is considered a GuideStar Exchange Platinum Participant by GuideStar USA, Inc. This level demonstrates PSI’s deep commitment to nonprofit transparency and accountability.